Research Request - CCAA | Charity Supporting Children With JIA

We are always happy to hear from researchers and appreciate all you do to help improve lives for the families we support. We love to share the work you are doing with families and know how much hope it can bring them for better outcomes and experiences.

With 40 local area Facebook groups covering England and Wales as well as social media channels reaching families across the whole of the UK and beyond, we are able to reach out widely on your behalf. As you will understand, therefore, we have a lot of interest and so it is helpful to have as much information up front as possible.

Please note we may need to stagger what we share so as not to overwhelm families with too many requests at once, especially if there are overlaps or similarities.

Please complete the form below if you would like our assistance.

We would ask that you give us at least 2 weeks (ideally longer) notice if you would like us to share something. We are all volunteers and fit in our work for CCAA around the other things we do and so we must be mindful of everyone’s time and the need to plan and manage this respectfully.

Thank you for your understanding and we look forward to hearing back from you.

Name

First Last

Please could you tell us briefly what inspired you to work on this project.(Required)

We would like to know next steps from this ie how you would propose to get your findings to influence/change paed rheum care.(Required)

We feel it is critical to keep families in the loop with the findings/outcomes of research if they have contributed to it. How will you keep us informed of the findings /conclusions of your work so that we can share that with families?(Required)

Is there any reward / reimbursement or payment offered for the time and expertise of participants?(Required)

Yes

If there is interest would you be willing to come and speak about your work to families either at one of our support events or via a web event? (Required)

Additional information

Optional, space to provide any additional information

Any supporting information you wish to provide

Max. file size: 64 MB.

Research Supervisors Contact Details

Research Supervisors Name(Required)

First Last

Research Supervisors Email(Required)

Data consent(Required)

I consent for the above details to be retained on a CCAA Database.

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